Advancing Data Linkage through Health Data Stewardship and Governance

To maximize the value of Canada’s health system data, it must be timely, connected, accessible, comprehensive, relevant, contextualized and trusted. Currently, the Canadian health system operates as a series of data islands with varying degrees of governance, data content standardization and interconnectivity. To achieve a modern, connected health data ecosystem that enables cross-sectoral and cross-jurisdictional data linkage, a “team Canada” systems approach is needed. Central to this approach is the development and implementation of a pan-Canadian health data stewardship framework and governance model. The Framework outlines the conditions needed to share, link and use health data responsibly to benefit all Canadians, improve patient and population health and drive innovation. Public trust and engagement are a key component, ensuring stewardship reflects public values, needs and expectations. Other components cover considerations for advancing legislation, governance, data access and infrastructure to ensure the safe and ethical use of health data. The Governance Model establishes a national, strategic coordinating “nerve” centre for health data stewardship and supports shared d